Saturday, February 7, 2009

Fly Away Sweet Baby...

Hi all!

It is with a heavy heart that I write to you today. Miss Zoey flew away last night to join all of the other angels that are playing with Jesus today in Heaven's Playground.

Please know that all though Zoey is no longer with us, she is free of pain, sickness, hospital teseting and fear. God has plans for all of us and I assure you it is NOT to live the way this little angel would be living if she were still with us today.

I ask that all of you pray for the understanding and healing of Zoey's amazing parents who have fought this battle just as hard as she has over the last several months. Be with them in your thoughts and prayers as they prepare to lay this sweet angel to rest.

Thank you so much for following this sweet story and for ALL of your continued prayers for the family, friends, and loved ones. I ask that you pray for the amazing doctors that had the joy to work witih this sweet baby through these times. I also ask that you thank GOD for the photographer that gave the parents some of the sweetest memories they could ever ask for of this baby.

Special thanks to Stephanie Drummond Photography who through her incredible photopraphy will help Miss Things Boutique keep Zoey's beautiful memory alive on our website daily. Her work is amazing and will tell stories of this baby for years to come! Thank you Stephanie for sharing this sweet angel's life with ALL of us!


Friday, February 6, 2009

Miss Zoey...

I so wish I was able to describe the pain my heart is feeling right now. As I sat on the side of Zoey's bed this evening, holding her precious little hands, I realized that this may very well be the last night I have with my daughter. Derick and I are scared to sleep because we don't want this night to end but at the same time we can hardly keep our eyes open because we are so emotionally exhausted. We have ran through our options over and over again....making sure there is nothing else we can do and trying so hard to reassure ourselves that we are doing the right thing. We have muddled through most of the day, in a fog really, consumed be fear and depression. This is our baby, our little girl, our beautiful Zoey Jane...she has consumed our thoughts and our hearts and has been what I have lived for the past 6 months. We are scared to be without her, worried of what tomorrow holds for her and horrified of the thought of living our lives without her.I want so badly to believe that I am wrong about all this. The logical part of me says that she is very sick and is getting worse. Every doctor we have spoken with says that, medically, there is nothing else we can do for Zoey. They tell us that it is 'hopeless.' But I know that there is always hope and my heart says that she will be healed. That I have asked for it and believe that God can do it, so it will happen. I am begging that God empty me of fear and refill me with faith and hope. God says that whatever we bring to him in prayer and believe in our hearts, then it will be. I have came to him in prayer, asked for the complete healing for Zoey and know that he has the power to do it. I have not asked for it out of fear, I have asked for it out of faith. I am turning it completely over to him and truly believe that God is going to use Zoey to prove everyone wrong. He is ALMIGHTY and POWERFUL and DOES heal and WILL heal Zoey. I am trying to remove all of my feelings of doubt, fear and sadness…and rest solely on his word and promises. I know that he is with Zoey, Derick and I constantly and when everything else has failed he is still faithful and still in control. Miracles are not logical and they are not supposed to make sense in our minds, that is why they are called miracles.We are planning to extubate at noon or one tomorrow. We will need extra prayers during that time. We appreciate all of the encouragement and love that we have received from everyone. Derick and I have sat here and read the things that you have wrote and each word has touched our heart. Thank you for the phone calls, text messages, e-mails and every ounce of love and support that you have shown our family. We ask that you continue to pray and BELIEVE with us. Love, Jenny and Derick

Wednesday, February 4, 2009

“I knew you before you were born and I designed you for my purposes.” UPDATE ON ZOEY


For all of you who are following and praying for Miss Zoey and her mommy and daddy, here is the latest. PLEASE pray for peace with this little family. Pray that Miss Zoey is as comfortable as she can be and in no pain. Thank you guys for following! You ALL are wonderful!Love you guys!Angie

“I knew you before you were born and I designed you for my purposes.” Jeremiah 1:5.This has been a very long week. I really have no energy or desire to be typing this but here is the edited version. We had our meeting, discussed the severity of the situation and then made plans to go to Memphis. We wanted to be with our neurologist and have him to look at her one final time to make sure that there was nothing else that we could do. We tried to go to Memphis and after 4 days of waiting for a bed there was finally one available. When the crew that was transporting us came to pick her up she was not stable enough to go. Her heart began to beat irregularly and her breathing worsened almost immediately. We decided that God did not obviously want us in Memphis. Our neurologist asked that another MRI be done to see if indeed things were progressing. Zoey had to be intubated and put a ventilator. She is still breathing on her own. She just needs a lot of help. She underwent the MRI. We had high hopes for great results but they were much worse than even we expected. The white matter or myelin was almost completely gone. There was also a significant deterioration of normal brain tissue and mass. This is a progressive disease, meaning it is only going to get worse. We have spoke with our neurologist as well as the doctors here in length about this condition and what exactly to do for Zoey.Derick and I have decided not to put her through anymore than she has already gone through. There is no cure for this or even any effective treatment. We have hope and faith that she could still make it but we are not going to have her go through a tracheotomy and ventilator for home use. This would not be for Zoey, it would be for us, so we did not have to go through the hurt and pain or loosing our daughter.This indeed is the hardest thing we have ever had to go through. Our emotions change from one minute to the next. I am hysterical and crying pretty much over everything…I cried a lot to begin with though. Derick and I have breakdowns and then do ok for about an hour or so and then the cycle starts up again. We are trying to get family here to love on Zoey before we extubate her. We plan on taking the tube out Friday and then will start comfort measures so there will be no suffering for her. We have not given up on the miracle and Derick and I keep reassuring the other, that these are only doctors….they are not OUR GOD!!! Please pray for us. Please continue to pray for Zoey and her miracle. This is not too big for God. We have to have faith that it is still possible. We love you all. Thank you for your support.